Little Robert and the Finance Law

Robertino.jpg

Little Robert is 3 years old. He lives in Sardinia and suffers from a rare genetic illness, Metachromatic Leukodystrophy, that will lead to a progressive and unstoppable deterioration of the neurological and mental functions.
800.000 euro is needed to save him. The group www.proroberto.it has been formed to collect the money and save his life. About 500.000 euro has been collected. 300.000 Euro is still needed. Let’s help him. Let’s not let him die.

Lots of people ask me to comment on the Finance Law. What should I say? A finance law that lets children die but thinks about the middle class, and the upper middle class, about progressive taxation, about 4 x 4s, about tightening up on company cars about weighty extras. I don’t care a fig for this finance law and even less do I care about the protest roundabouts.
What priorities do Italians have? How many children have rare illnesses? Where are the male and female ministers in these cases? The opposition and the government?
Which counts for more, the Messina bridge and the salary increase for parliamentarians or the life of our children?
I wonder why an Italian family has to be reduced to ask, to implore, to beg for charity from people to save their own child while the government spends thousands of million of Euro to patrol Lebanon and to converse with Hezbollah.
A State that doesn’t save its children from death because of illness is not a civil State. It’s a bank, a consortium of interests, an extraneous thing, almost repugnant.

How many children are there in Italy like little Robert? I ask families to describe their happenings in this post. Are there 1,000, 10,000, or 1,000,000 children? They all must be saved. Let Rosy Bindi, Prodi and Schioppa find the money fast. Let them do an additional finance law. Let them get moving.

Posted by Beppe Grillo at 02:35 AM in | Comments (24) | Comments in Italian (translated) Post a comment | Sign up | Send to a friend | | GrilloNews | listen_it_it.gifListen | TrackBack (0) |
View blog opinions
| | Condividi



Comments

Hey Admin,
Hope you are fine and doing well. I am Sabastian from Oak View Law Group and I want to contribute an unique and relevant article at your blog beppegrillo .it
Please let me know that how many words count you allow?

Your positive reply will be highly appreciated.

Regards,
Sabastian.

Posted by: Sabastian Haan | January 29, 2013 11:23 AM


Oh Dear, I am really sorry to hear about such thing. Very cute kid and I think it is not a big amount and the kid will live his happy life. I only can send him good wish. Long live My CUTIE

Posted by: payday loan | November 7, 2007 03:19 PM


Why you should not have
“Heart and Vascular Care at SOMC At Southern Ohio Medical Center...".

"At SOMC we are winning the battle against heart and vascular disease. Our dedicated doctors and nurses provide the most advanced treatment close to home.” [from www.somc.org/heart]

Reason Number ONE – Heart care
There is no physician who would have cardiac catherization for himself or his/her family in a cath lab where there is no possibility to treat as well to diagnose. In other words, if you have coronary artery disease, there is no point in having diagnostic cardiac catheterization in a center not approved for angioplasty and stenting, because the procedure has to be repeated in a center where you can be treated. You will have twice the probability to develop complications, you will pay twice as much, and finally you will delay your needed treatment. And if you do not have coronary disease, why should you have the catheterization in the first place?
None the less, SOMC ads want you to believe that you need to have a cardiac cath done at SOMC, where they cannot do angioplasty and stenting, where they cannot treat coronary artery disease. They do not tell you that, if coronary artery disease is found, you need to have the same procedure repeated again at Grant’s in Columbus or in King’s Daughters in Kentucky or in similar centers where they have the option to treat you. SOMC ads do not tell you that performing twice the same procedure will double your complication risk and will double your cost. In other word, they do not tell you that stopping at SOMC to have cardiac catheterization is superfluous, expensive, and possibly dangerous.
If you go on the SOMC site [www.somc.org], you notice that there are cardiologists who have an office address at SOMC Campus. These are the cardiologists who actually work at SOMC, where they do NOT perform angioplasty or stenting or other advanced coronary treatment. Essentially, these are the cardiologists who perform catheterization at SOMC, but they cannot treat you if they found a narrowing in your coronary arteries.
You can also notice that some cardiologists are generically located at:
“SOMC Cardiac Cath Lab, 1805 27th Street, Portsmouth, Ohio 45662”
These are cardiologists based in major hospitals of Columbus. They rarely come to Portsmouth, eventually just for office consultations. They are essentially “names”. They are the ones to which SOMC refers outside SOMC, for the actual treatment of coronary disease. They are the second stage of the medical extortion that starts at SOMC. First, you pay for something superfluous at SOMC, and then you have to pay again SOMC outside associates, if you want something done.

Reason Number TWO – Vascular Care
There is no surgeon which is board certified in vascular surgery practicing at SOMC. You have to request a straight answer when you ask: “Do you have a surgeon certified by the American Board of Vascular Surgery at SOMC?” They will try to reply stating that they have surgeons specializing in vascular surgery, surgeons practicing advanced vascular surgery, physicians experts in endovascular techniques... but do they have a surgeon certified by the ABVS? Please, call the SOMC Heart and Vascular Center and ask just this question.
Would you trust a vascular center, which claims “excellence”, but tries to hide that they do not have a board certified specialist?

Reason Number Three – Gossips
Go to your primary care physician, if you trust him/her. He/She cannot deny that truth and rational support what I have said above. Now allow me some comments derived from my past experience at SOMC.
Dr.Richard Rooney... when I came to Portsmouth, Dr.K.Stewart told me that I was soon to be the only thoracic surgeon, because Rooney was psychotic and he should have been removed from SOMC staff. Dr.Khoury –previous partner of Dr.Rooney- told me that Dr.Rooney was stealing from him and from the practice. In the archives of Scioto Court you can still find several trials ‘Khoury vs Rooney’. You can also find many malpractice cases against Dr.Rooney. You can find Dr.Rooney in the Supreme Court of Ohio, for refusing to see a patient in the ER while he was on call, because the patient was HIV positive. Dr.Khoury reported that Dr.Rooney once threatened him at gunpoint.
Dr.Rooney finally left Portsmouth and went to practice in Waverly. But recently, after the “stage” in Waverly, Dr.Rooney is recycled at SOMC main campus as OUCOM professor, and as co-surgeon of the Heart and Vascular center, side by side with his ex-partner Dr.Khoury.
What is wrong with this picture?

Reason Number Fourth – Chronic liars
The Dever’s, a family of attorneys who has built power and wealth on mendacities, tightly controls SOMC.

Conclusion
If this is the truth about one of SOMC centers of excellence, what to say about the others? Would you rely on the SOMC Cancer Center? Or is it another questionable institution mystified behind brainwashing advertisement? In the past I presented evidence about poor care in the Emergency Department. And the rest?


Posted by: Pietro Guadalupi | October 6, 2006 11:46 PM


Quindi chi non ha i soldi muore !!

Bel progresso.. bella società...!!!

Posted by: Roberto Orsi | October 6, 2006 10:27 AM


A rare disease is affecting central bankers:
Monopoliomyelitis (Monopoliomielitis Nummaria)
(a.k.a. economic paralysis, mono-polio)

FAQ:

What is mono-polio?

mono-polio is a viral disease which may affect the central economic system: some people think they can be able to print fake money forever exclusively for their own benefit. While mono-polio immunization has not become widespread, cases of mono-polio are very common.

Who gets mono-polio?

Mono-polio is more common in adults working in the banking sector and occurs under conditions of poor etics and poor parental care.
However, economic paralysis is more common and more severe when infection occurs in older individuals. In exceedingly rare cases, mono-polio information has caused revolutionary acts in a person who received the knowledge or in a person who was a close contact of an aknowledged recipient.
Elitism [addiction to élite] do greatly increase the risk of getting the mono-poliomyelitis disease.

How is mono-polio spread?

Mono-polio is predominately spread through close-door bankers meetings in Basel, Washington, and Frankfurt.

What are the symptoms of mono-polio?

Infection ranges in severity from an unapparent infection - like Free-Trade zones - to a paralytic economic disease which may result in death of the whole economic system.
Symptoms include malinvestments, inflation, deflation, structural reforms, boom-bust cycles, flatulence, malaise, headache, excruciating social pain and hard stiffness in the back.

How soon after infection do symptoms appear?

The incubation period is usually six to 20 years of standard mainstream study in economics and finance.


When and for how long is a person able to spread
mono-polio?

Patients are most infectious from seven to 10 years after they are enrolled in a major financial institution (IMF, WB). However, patients are potentially contagious as long as the virus is present in their speeching and proceedings. The virus persists in the brain for approximately one week after they are fired from their employer and it is excreted in the feces for several weeks or, occasionally, months.

Does past infection with mono-polio make a person
immune?

There are three types of mono-polio virus (media professionals, congressmen and lobbyists). Lifelong immunity usually depends on which type of virus a person contracts. Second attacks are not rare and result from infection with a mono-polio virus of a different type than the first attack. I.E. you may be infected by a more rich-class-virus.

What is the treatment for mono-polio?

There is presently no definitive cure for mono-polio.
Treatment involves supportive care and enactment of complementary currency systems [ccs]. Some scientists label ccs as a palliative.

What are the complications associated with mono-polio?

Complications include economic paralysis (most commonly of the poorest). Paralysis of the economic activities can be fatal.

Is there a vaccine for mono-polio?

No, you can only try to immunize yourself by education. You can do it by reading many books available for free on the internet or joining some mailing-lists.
Adults traveling to countries where mono-polio cases are occurring should review their immunization status.

How can mono-polio be prevented?

Maintaining high levels of mono-polio education in the community is the single most effective preventive measure.

The Italian NGO driving an international campaign to fight against the Monopoliomyelitis disease - the Italian Center for Monetary Studies - can be found at:
http://www.centrostudimonetari.org

Posted by: Marco Saba | October 5, 2006 03:27 AM


Joselle, the money for these important causes is not available because the Italian economy and taxation system is so screwed up that this capital is just not available: it is either not collected, squandered or allowed to migrate to a Foreign Tax Heaven year after year. What's the point of a civil society in which individuals cannot be rescued from these catastrophic occurrences?

Raffaella, Countries like Holland, Switzerland and the State of Oregon have Euthanasia Legislation that works very well and has not been abused for years. Not only you can unplug the patient, but you can actively terminate his/her life under certain conditions. Much has been said about palliative care, but rest assured that this type of care is useless in the case of many diseases. And, like you said, what if you find yourself in a paralyzed body, unable to communicate, with the prospect of spending years looking at the ceiling over your head? Why are we so cruel and irresponsible not to allow euthanasia in these cases?

Posted by: Enrico Rossi | October 5, 2006 02:10 AM


MASTELLA AVVELENA ANCHE TE.


FALLO SMETTERE.


MASTELLA E' RADIOATTIVO.


CONTRIBUISCI ANCHE TU A FAR DIVENTARE

IL TUO COMUNE "COMUNE

DEMASTELLIZZATO" !

RACCOGLI FIRME E MANDALE AL TUO

SINDACO AFFINCHE' DELIBERI CHE

ANCHE LA TUA CITTA' SIA "ZONA

DEMASTELLIZZATA" !

COMITATO PER LA DEMASTELLIZZAZIONE DEL TERRITORIO


Posted by: Renata Vecchi | October 5, 2006 02:09 AM



My friends, I really don't understand why Italy is not the happiest place on earth.

Italians are so smart. So very well organized. So honest. So competent. So everything!

Just look at the comments here.

HOW CAN ITALY NOT BE THE HAPPIEST PLACE ON EARTH!?

...or maybe it is.

Posted by: Giannina Marchini mi manca l'Italia | October 5, 2006 12:34 AM


My friends, I was going to refrain from commenting on this post because I am too angry with the Italian health system, especially vis-a-vis the treatment of children born with delicate or rare defects or illnesses, congenital or not.

Yes, I am full of ire because I am speaking from my personal experience the details of which there is no need to elaborate too much. I have seen a lot of negligence and, in some cases, even indifference.

For example, how can a large hospital have just one piece of machinery, for example, when three or four of the same machines are needed badly? Why aren't doctors monitored and tested, having to pass efficiency bars, etc. to ensure that the health service given is REALLY good and that doctors/surgeons really know what the heck are doing with our lives?

Why doesn't the state grant more scholarships to doctors and surgeons in order to get specific and directed specialisation which can, in turn, be used in Italy?

Raffaella says that funding for research has been cut down by the previous government. I believe that funding in general has ALWAYS been limited and scant.

I am sorry for this boy. I can imagine what his parents are going through and I extend all my support. I believe that, when nothing can be done here to help a person with rare medical problems, then the government should give all the funds for parents to find an alternative elsewhere. This happens in other countries where medical specialisation might be restricted for one reason or another.

You know how much money is squandered uselessly in this country by any government... honestly speaking, what the hell is 800,000 Euros for the state when a hundred times that amount is splashed on useless "accessories and hospitality" that usually abounds where politicians are concerned.

.............................................

On another note, Beppe says that he does not care less about the financial year budget. Sorry Beppe, I care and do you know why? I am not at all surprised that again, another government has failed to keep its electoral promises and all the big statements made during the electoral campaign. So now I am sure many Italians are going to end up poorer and the tax evaders will still evade tax. And politicians are petty selfish beings and forever bloody liars.

Posted by: Joselle Camilleri | October 4, 2006 11:55 PM


Yes, Prince, I also think so, but the question is: sometimes ill people in those situations are not able to do anything to prevent this prolonged artificial life support, just because they are totally helpless confronted with the rest of the world: doctors, relatives,friends; they can't move, nor speak, nor go away from the place.
What do you think about a law which allows these terminal patients to ask the doctors to pull the plug out? That means to be able to determinate if the own life must be terminated, because it's no more dignified enough?
Today, in Italy and in many other countries it's impossible to do it.

Posted by: Raffaella Biferale | October 4, 2006 10:35 PM


I don't really understand this post about the finance law. I really hope that Robert will be fine. And so, I guess, everybody does. But this doesn't mean that to run a country, thing needed also by Robert, governments have to deal with taxes, 4x4s and these things.
Said that, of course research foundings in Italy are too low. But don't expect that incresing them will improve much the situations for rare diseases. It's sad. But budgets are anyway limited by definition. And you if you want to put money into something (that means, you want to pay with your taxes people to do something)... when with the same amount you could save millions (cancer, hiv...) or a few... which would be your choice ?
I mean, this is very sad. Money are nothing respect to life. But our resources are limited.

Posted by: Andrea Splendiani | October 4, 2006 09:54 PM


Regarding the other post about euthanasia, I think that if it would happen to me, I would never let anybody torture me with this therapeutic life-pumping treatments.
I will just take it like a man and wait for the end.
When the end will come, so be it.
If not, that means I will have to witness more about myself.

Posted by: Giovanni Principe | October 4, 2006 08:48 PM


By the way, Prince, I was waiting for your opinion about euthanasia (second last post).
What do you think about it?

Posted by: Raffaella Biferale | October 4, 2006 07:01 PM


Prince, I read on the italian blog that the site doesn't work very good because of the many access!
Try it later!
:-)

Posted by: Raffaella Biferale | October 4, 2006 06:51 PM


I can't get on Roberto's site.

I'll try later.

Posted by: Giovanni Principe | October 4, 2006 06:40 PM


Hi Giovanni, welcome on the english blog!
The problem in Italy is that funds for the research have been cut down by the former governemnt, and even befor it, they wasn't enough to permit the research about rare (and common) illness!
In our country there isn't enough money to invest into research neither in public nor in the private sphere, and because of this we are not able to cure this child and many others too.
Much worse, the research about staminal cells is not permitted in Italy, even because of the ignorance of many italians who didn't vote at the referendum last year.

PS) I already gave my little contribution to Roberto :-)

Posted by: Raffaella Biferale | October 4, 2006 05:22 PM


Hello everybody.

To answer the questions why certain treatments cost so much and why they are not provided for free or low cost, is quite simple to explain in two words: "Rare illnesses".

Cold medicines are cheap because millions of people use it every day, therefore pharmaceutical companies can make a profit out of it. Researching a rare illness costs a lot of time and money, years spent to find a way to cure it. A company has to shell out money to pay for people and infrastructures, in these cases for years, sometimes without having a success for decades, and when they finally find something suitable and efficient for a therapy, they want to get back at least part of their invetments.

But being these illnesses found, fortunately, in a very small part of the world population, the cost of the therapy is spread across fewer patients. It might appear hearthless, but nobody wants to work for free.

Enough talking now, it's time to do your part, if you had not done it yet, and shell out a little contribution to hope. Give what you want but give, you will feel better!!!

Hopefully little Roberto will too.

Posted by: Giovanni Moretti Senzitalia | October 4, 2006 04:50 PM


NOW PLS YOU FANTOMA...DON'T MESS UP WITH THIS CONVERSATION TOO....IT'S NO FUNNY AND WE ARE REALLY GETTING TIRED OF YOUR PRESENCE...

Posted by: paola filinesi | October 4, 2006 02:47 PM


Raffa, I know that...however, not all illnesses are treated in the US...Specialists are to be found all over the world.
For example, Thalassanemia (Cooley's Anemia) is an illness effecting people of the Mediterranean area, so here is where specialists are for this specific illness.
Now, if a rare case is found in the US and has to be treated in Italy, my belief is that no money should be needed....Traveling expenses, hospitalization, treatment, everything should be offered for free.
Greek doctors have repeatedly treated children victims of the Iraq war without payment. They were picked up by military planes and brought to Greek hospitals with no expenses what so ever for the families.
Why is it that in cases like Robertino's and other children in other countries every so often we have to raise funds to save their lives???

Posted by: paola filinesi | October 4, 2006 02:43 PM


prova

Posted by: nick sandro miranda | October 4, 2006 02:12 PM


Paola, I agree 100% but the problem is that the 800.000 euros are needed because here in Italy there are no possibilities to treat this illnnes, Robertino should be treated in America.
You can find this information on the link to robertino's website.
I think the really problem in Italy is the lack of research, rare illness can't be cured because we have not the necessary knowledge, medicines and instruments to do it.
The former government cut down on research funds,I hope this governmnt will do the contrary otherwise we will go on sending incurable people to the US, and financing their cure with good will and private solidarity

Posted by: Raffaella Biferale | October 4, 2006 01:31 PM


Enrico,
You know what aggravates me even more???
Donations that are tax free!!!
In cases like Roberto's is where "magnanimity" is needed, not in galas and celebrity shows...

Posted by: paola filinesi | October 4, 2006 01:12 PM


Paola, I couldn't have said it better.

Posted by: Enrico Rossi | October 4, 2006 12:39 PM


To begin with I will have to make something clear first...I am not siding with the Government or anything like that here. My heart goes out to all those parents who have children in need, being a parent myself;

BUT

The illness is rare while the case is not.
I strongly resent these appeals and you know why??
Because in these cases money should not be the issue!!!
When a person is in so much need of help NO MONEY should be required....help should be given for FREE...

Who will get these 800.000 Euros???

Why,those able to provide the treatment needed, dont't offer it for FREE??

Posted by: paola filinesi | October 4, 2006 11:37 AM


Post a comment


Beppe Grillo's Blog is an open space for you to use so that we can come face to face directly. As your comment is published immediately, there's no time for filters to check it out. Thus the Blog's usefulness depends on your cooperation and it makes you the only ones responsible for the content and the resulting outcomes.

Information to be read before using Beppe Grillo's Blog

The following are not allowed:
1. messages without the email address of the sender
2. anonymous messages
3. advertising messages
4. messages containing offensive language
5. messages containing obscene language
6. messages with racist or sexist content
7. messages with content that constitutes a violation of Italian Law (incitement to commit a crime, to violence, libel etc.)

However, the owner of the Blog can delete messages at any moment and for any reason.
The owner of the Blog cannot be held responsible for any messages that may damage the rights of third parties Maximum comment length is 2,000 characters.
If you have any doubts read "How to use the blog".

Post a comment (English please!)


First name and Surname*:

Email Address*:
We remind you that anonymous messages (without real first name and surname) will be cancelled.
URL:


* Compulsory fields



Send to a friend

Send this message to *


Your Email Address *


Message (optional)


* Compulsory fields


Beppe Grillo Meetups

meetup.jpg
Groups 372 Members 76.596
Cities 281 Countries 10

Books and DVDs

grillorama

Check out the books and DVDs of Beppe Grillo (service in Italian)

Initiatives


Terra Reloaded DVD

Clean Up Parliament

Map of Power


Awards

Webby award
14th Annual Webby Awards Official Honoree Selections

Interviews


Tegenlicht - Beppe Grillo's Interview

"De toekomst van Europa volgens Beppe Grillo"

(Tegenlicht TV)

International Press Review

The New Yorker
"Beppe's Inferno"

Times
"The Comic Who Shook Italy"
(The video | Related post)

Forbes
"The Web Celeb 25"
(Related post)

BBC
"Meeting Italy's silenced satirist"

AlJazeera
People and power: "Beppe's Blog"

TIME magazine
TIME.com's First Annual Blog Index
(related post)